Family Carer Training Research & Resources

On this page you will find a series of resources which will be of interest to those organisations wishing to expand their suite of resources and improve the evidence base behind their supports and training for Family Carers. If you feel there are other resources which are missing, please get in touch by emailing

Websites

Personal Outcomes Collaboration (Scotland - partcular focus on supporting family carers) 

InformCare (Eurocarers Portal)

CarerSupport Integrated platform for informal carers' Training, Tele-consulting and Collaboration

EuroCarers Specific information on training and information for Family Carers

Dementia Services Information and Development Centre (St. James Hospital) 

Social Work Practice with Carers (Department of Health UK)

Caregiver Briefcase for Psychologists (American Psychological Association)

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Books

Miller, E (2012) Getting Back to What Matters. Dunedin: Edinburgh.

Velthuis, S (2012) Knowing and showing your outcomes and impacts: A resource guide for community and voluntary organisations. The Wheel: Dublin. (Available online here)

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Articles

 

Outcomes/ Evaluation

Glendinning, C., Clarke, S., Hare, P. et al (2008) Progress and problems in developing outcomes focused social care services for older people in England. Health and Social care in the Community 16(1) 54-63

Petch, A. Cook, A. and Miller, E. (2013) Partnership working and outcomes: do health and social care partnerships deliver for users and carers? Health and Social Care in the Community 21(6):623-33

Qureshi, H. & Nicholas, E. (2001) ‘A new conception of social care outcomes and its practical use in assessment with older people’. Research, Policy and Planning, 19(2), pp.11-25.

 

General information

Carnevale, G. J., Anselmi, V., Busichio, K., & Millis, S. R. (2002). Changes in ratings of caregiver burden following a community-based behavior management program for persons with traumatic brain injury. Journal of Head Trauma Rehabilitation, 17(2), 83-95.

Davis, L., Burgio, L. Buckwalter, K. & Weaver, M. (2004). A comparison of in-home and telephone-based skill training interventions with caregivers of persons with dementia. Journal of Mental Health & Aging, 10(1). 31-44.

Mittelman, M. S., Roth, D. L., Coon, D. W., & Haley, W. E. (2004). Sustained benefit of supportive intervention for depressive symptoms in caregivers of patient’s with Alzheimer’s Disease. American Journal of Psychiatry, 161(5), 850-856

Query, J. L., Jr., & Wright, K. (2003). Assessing communication competence in an online study: Toward informing subsequent interventions among older adults with cancer, their lay caregivers, and peers. Health Communication, 15(2), 203-218.

Schulz, R. (2000). Handbook on dementia caregiving: Evidence-based interventions for family caregivers. New York, NY, US: Springer

Schulz, R., Gallagher-Thompson, D., Haley, W., &Czaja, S. (2000). Understanding the interventions process: A theoretical/conceptual framework for intervention approaches to caregiving. In R. Schulz (Ed.), Handbook on dementia caregiving: Evidence-based intervention for family caregivers (pp. 33-60). New York: Springer

Schultz, R., Martire, LM, & J.N. Klinger (2005) Evidence-based Caregiver Interventions in Geriatric Psychiatry. Psychiatric Clinics of North America, 28 (2005), 1007-1038.

Tremethick, M. J., Wilken, C., Miller, R., Walker, K., & Meier, P. (2004). The PATH Program: Meeting health promotion needs of older adults. The Southwest Journal on Aging, 19, 25-32.

Teri, L. (1999). Training families to provide care: Effects on people with dementia. International Journal of Geriatric Psychiatry, 14, 110-119.

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Resources

General Resources

Hewitt, L. & Burton, S (2016). Caring Counts: Guide for Facilitators. Open University. Available here. 

Open University. The Guide for Open Learning Champions. (http://www.open.edu/openlearn/sites/www.open.edu.openlearn/files/guide-for-open-learning-champions-with-links.pdf) 

Outcomes/ Evaluation

Cook, A. & Miller, E  (2012) Talking Points Personal Outcomes Approach: A Practical Guide, JIT. (http://www.jitscotland.org.uk/wp-content/uploads/2014/01/Talking-Points-Practical-Guide-21-June-2012.pdf)

Petch, A. (2012) We’ve Got to Talk about Outcomes: Review of the Talking Points POA Implementation, IRISS (https://personaloutcomes.files.wordpress.com/2014/03/iriss-talking-points-review-2012-2.pdf)

Barrie, K. (2013) We’ve Got to Talk about Outcomes 1-5, Glasgow: The Alliance (http://www.alliance-scotland.org.uk/download/library/lib_525f94677eda9/)

Gardner, J. (2015) Meaningful and Measurable, VOCAL Final Project Partner Report (https://meaningfulandmeasurable.files.wordpress.com/2015/04/final-project-partner-report_vocal.pdf)